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Peripheral Neuropathy - Result of PMR or Prednisone?

Polymyalgia Rheumatica (PMR) | Last Active: Sep 2, 2023 | Replies (29)
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@napapos

Kspowell,
I have had the same PN in the balls and toes of both feet for ten years. I am asthmatic and have taken various doses of prednisone for over 40 years. I find that prednisone has no effect on my PN.
I had no prednisone for about three years until 3-20-23 when I was diagnosed with PMR. My issues started in January 2023 when my whole body went into a painful shock. WTHeck! I am 73 and have never had pain like this! I am now on my second taper. 10 mg for two weeks, 7.5 mg for two weeks, then 5mg for two weeks. Then neurologist tests for inflammation. I hesitate to alter my dosage without my doctor’s permission, so I take Advil to supplement pain relief. 5mg prednisone is not working. Will see my doctor next week for reevaluation. Let me know if you find anything that works for your PN. I take Lyrica daily and that only mildly reduces my PN pain.
Blessings..

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Replies to "Kspowell, I have had the same PN in the balls and toes of both feet for..."
John, Volunteer Mentor | @johnbishop | Aug 15, 2023

Welcome @napapos, I'm glad to see that you have connected with @kspowell. I'm sorry to hear that PMR joined neuropathy and your other conditions. PMR is definitely a what in the heck is going on condition. I just think of it as Mr. Ugly raising his head to give me additional pain and grief. Sometimes you can have PMR flares with normal inflammation markers (SED and CRP). We have many other discussions you might be interested in that you can find in the Polymyalgia Rheumatica (PMR) Support Group here: https://connect.mayoclinic.org/group/polymyalgia-rheumatica-pmr/.

I'm not sure how much your starting dose was back in March but the name of the tapering game is slow, slower and slowest. You might find this discussion helpful:
--- PMR Dosages and Managing Symptoms: https://connect.mayoclinic.org/discussion/pmr-dosages/.

Can you let us know what you find out at your appointment next week?

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