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DiscussionHow long were you Incontinent? How did it come back for you?
Prostate Cancer | Last Active: Aug 26, 2023 | Replies (21)Comment receiving replies
Replies to "pamperme I am so sorry to hear your story and hope they find a way to..."
The pelvic pain started many years ago. I had a tump (microwave) for an enlarged prostate. This caused me to have retrograde ejaculation. I would get pain after sex in the front pelvic area They thought it was prostasis and gave me heavy antibiotics for months. Then they said I had much debris in the area along with a pea sized blockage which could be felt in the seminal duct and a 2 cm fluid showing up on MRI. I had pain on both sides, worse on the left. They operated on the left side and it seemed better but came back. Due to a car accident I was put on heavy nerve medicine for my shoulder. The pelvic pain would come and go. I started to have urinary and fecal incontinence issues off and on but did not tie to this. The pain got worse and more varied in the pelvic area. When I was told I might have PC I was extremely stressed and the pelvic pain has been chronic. One day my entire pelvic area became inflamed and tingling and I went to the urologist and he told I did not have an infection but this was the nerve. Surgery took out the seminal vessels which I think was causing me the most pain at the time. Now my pain has become worse and is driven by any muscle tension or pressure in the pelvic area. I am trying to manage the pain, not sitting, stretching, relaxation and trying to reduce stress. My prostate PSA has been good through nine months. I do have the hernia at the belly button incision and the incontinence but the pelvic pain is my highest priority. I just wish it would turnoff like it use to buy it has been there now since March of 2022. I was getting less pain but when The pain lessened and I started the Kegels and the pain came back with a vegenance. It is stopping me from doing things I like to even though I am trying hard to not let it
Best wishes to all