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Has anyone been diagnosed with Anca vasculitis GN with DAH
Autoimmune Diseases | Last Active: Aug 18, 2023 | Replies (16)Comment receiving replies
@SusanEllen66 thanks for your response. My doctors couldn't answer my question, they say symptoms vary for each patient, but if I was to have a flare it would be detected early and treated, therefore not becoming life threatening as my first experience was. My doctors have been great, it's just that my symptoms came on so quickly and landed me in the hospital fighting for my life, I wonder how easily it would be to find myself back in that same situation.
I have infusions of Rituximab every 4 months which strips my immune system each time. I wonder if I got the flu, Covid, or strep.....could it mean my demise?
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@bagill003 oh my goodness, you have really been going through a rough time!
In my opinion, I think you would know you are flaring immediately because you are hypersensitive to the symptoms. That’s a good thing.
You, me, and millions of other people who are taking immune suppressants are all at risk. I am careful, but I typically don’t do anything special to prevent disease.
Life is short, and I believe in God who takes care of me. He will decide when I get to go home to Him. So, I don’t worry about dying.
My dad took fairly good care of himself. Two days before his 86th birthday, he crossed the street into the path of a car and was killed!
We just never know…