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PMR Dosages and Managing Symptoms

Polymyalgia Rheumatica (PMR) | Last Active: Jul 27 8:00am | Replies (468)

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@jonnydonny

Hi if its any comfort i had a complete meltdown 3 months ago unbearable pain i was on 8mg I had to go back up to 10mg for 2 wks then 9 mg for 2 wks then 8 mg for 6 weeks this Saturday I drop to 7mg for 4 wks then drop 1 mg every 4 weeks till hopefully get of them altogether
But I am also on methotrexate these will take over from the presidelone since I seen the consultant and he seems to think I don't have pmr but rheumatoid athritist it's a totally different ball game I now have go through a series of tests for lungs heart liver kidneys I have to also have a Mir scan and get my BLOODS DONE every 2weeks it's turned into a nightmare but the important thing is that I remain totally positive and the future looks promising I don't know what the outcome is going to be but hey ho I'm still alive and kicking and that's all that really matters I do feel for because people don't understand how bad the pain can be so it's it's nice to speak to people who can understand what your going through I'm a great believer there's light at the end of the tunnel just keep believing and you make a full recovery good luck and take care 👍

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@jonnydonny
I certainly empathize with your pain. PMR is a debilitating disease and for me it requires a lot of Jesus. I don’t have the patience or strength for these flareups. I have to rely on Him to get me through each day. I have been in pain since January 2023, diagnosed in April and on prednisone ever since.
Stay strong and be sure your loved ones understand what you are going through with this disease so they can support you.
Blessings