Hello All! Thanks so much for all that you have shared. I've been on such a crazy journey over the last seven years. It seems it is now culminating in a diagnosis of Fibrillary Glomerulonephritis. In 2011 I was diagnosed with colon cancer stage 1. A poly was removed, and no additional treatment was needed. I proceeded over the next several years, having a colonoscopy every 6mths. In 2016 my son died in an auto accident my dad died three months later. In September 2020, I was diagnosed with uterine cancer, and my mom died within three days of each other. All of my female organs were removed, and because it was a fast-growing cancer, they recommended five treatments for radiation just to be cautious. No cancer was found in the uterus or the surrounding area. Earlier this year (February), I went in for routine bloodwork, and all my red blood counts were low.
I couldn't understand why I was getting winded walking up the stairs. I thought it was old age. My eGFR was 33. I went to my PC doctor, who explained everything to me, and I had no idea how serious this was. He, in turn, sent me to a nephrologist and a Hematologist. The hematologist set me up to get a shot that helped to stimulate my bone marrow to produce red blood cells, and it was a fantastic boost to my energy level and stamina. The nephrologist did a genetic test which came back negative, and then he told me the next step would be a kidney biopsy which was done on 6/30. I received the results of that in July, and they were inclusive. My nephrologist sent them to the Mayo Clinic for further analysis, and today, my doctor confirmed Fibrillary Glomerulonephritis. So that's where I am today. I'm due for another shoot this week, but my red counts have to be low to qualify for the shot. It seems sad to have to qualify for treatment that helps you feel better. I'm here to learn and possibly understand this disease to live the best possible life God has for me. I am also Grief Recovery Specialist, and I'm learning a lot about how our health is affected by grief and loss. Thanks so much for reading. DK