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@pamperme

I had pelvic pain due to pudendal neuralgia prior to my surgery. I had urinary frequency and urge incontinence, this is what got me to the urologist and they found out I had prostate cancer and I had a prostatectomy in September of last year. The first week I was ecstatic, the bad pelvic pain in front went away and with the catheter I was not getting up every hour. After the catheter was removed things went downhill. I ended up with pain in the anal sphincter and can not sit and pain in the external urinary sphincter and penis. The nerve makes muscles hypersensitive and any tightening leads to pain along with any bladder or anal pressure. While I was able to use pull ups including depends prior to surgery I am now using diapers. My penis became smaller after surgery and pulls into the scrotum or becomes blocked by the scrotum and the urine goes off the sides and leaks at the depends leg seam. This also caused friction there and caused rashes when I did my long walks. The diapers I use have leak guards and keeps the urine in the padding to be absorbed. I have had very high pain each time I tried Kegels. I also was taking oxybutin to help stop the urges and increase bladder capacity but I ended up in very high pain due to the bladder pressure which radiated in my pelvic area when it was getting filled more. At this point all I want to do is lower the pain level. I almost want to go back to an internal catheter to allow pressure to be lowered. I have been doing pt and they have given me stretching excercises and they put pressure on certain locations which helps some.

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Replies to "I had pelvic pain due to pudendal neuralgia prior to my surgery. I had urinary frequency..."

pamperme

I am so sorry to hear your story and hope they find a way to help with the pain soon. I suppose you have seen a different doctor for their ideas or other options. I only know to pray for you and do not know what to say about your journey. I hope so much that it gets better soon.

Gary