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Has anyone been diagnosed with Anca vasculitis GN with DAH
Autoimmune Diseases | Last Active: Aug 18, 2023 | Replies (16)Comment receiving replies
@bagill003 so sorry you have been through all of this.
I don’t think anyone could have an answer to your question. Have you spoken with your doctors?
Your rheumatologist might be able to give you some information about the Vasculitis and its flares. I have a different form of Vasculitis than you, but it’s all a challenging process. Same applies to fibromyalgia. I also have that. Some days I feel ok and the next day I’m not…
My experience with autoimmune diseases has been long and painful. In fact I have a new one. It’s neurological and right now I’m in lots of pain. Tomorrow morning I’m going to have to start taking prednisone again…
I hope you feel better soon. The fatigue is horrible with all of this. I understand.
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@SusanEllen66 thanks for your response. My doctors couldn't answer my question, they say symptoms vary for each patient, but if I was to have a flare it would be detected early and treated, therefore not becoming life threatening as my first experience was. My doctors have been great, it's just that my symptoms came on so quickly and landed me in the hospital fighting for my life, I wonder how easily it would be to find myself back in that same situation.
I have infusions of Rituximab every 4 months which strips my immune system each time. I wonder if I got the flu, Covid, or strep.....could it mean my demise?