Hi everyone,

Don’t forget this is the last week to listen to the World Bronchiectasis Conference recordings!

I’ve been reviewing those I find most interesting, including the keynote addresses. Dr. James Chalmers in his keynote said that with access to large database registries, “I am excited about where we are in bronchiectasis. I think we’ve gone from a thousand unanswered questions to having huge cohorts and the ability to do research at scale.”

It was reassuring to hear Dr Chalmers, a top researcher and clinician, make this announcement the day of the conference. I also felt proud to be participating in the US Bronchiectasis Research Registry. I was first enrolled in the registry four years ago as a new patient at NYU Langone and now, every year, we update my information.

This is the link to learn more about the US registry and which centers participate (Mayo participates!):
https://www.bronchiectasisandntminitiative.org/Research/Registry/Bronchiectasis-and-NTM-Research-Registry
There are registries throughout the world and if you have the opportunity to join one, I hope you will seriously consider it.

These registries enable scientists to do research on potential new therapies and hopefully, in time, find a cure.

Best,

Linda Esposito