← Return to Survivorship: anyone else struggling?

Discussion

Survivorship: anyone else struggling?

Gynecologic Cancers | Last Active: Sep 2, 2023 | Replies (47)

Comment receiving replies
@cmb2022

@aardvark2118
I totally understand your fears. I finished 28 external and 3 brachytherapy radiation treatments right before Christmas last year for a reoccurance of Endometriod Adenocarcinoma. I was just 7 months out from my complete hysterectomy when the reoccurance was found. I see my gynecological oncologist every 3 months and my radiation oncologist often as well. Those visits are terrifying for me. At my last one the NP found a suspicious area that she decided to biopsy and those days waiting for the results were long and worrisome. It turned out not to be cancer, but still was abnormal so they will likely do another biopsy at my next appointment. I had a PET scan 6 months after my last brachytherapy, but was told that would likely be the last because they aren't recommended and insurance fights them because of the cost. My treatment plan didn't involve counseling or even a nutrition plan which surprised me. Care is so different from one provider to the next.
The month after my last treatment I was so lost. I guess you get so used to all the appointments and tests that once they are over you are not sure what to do with yourself.

It is a lonely journey for sure.

Take care!

Jump to this post


Replies to "@aardvark2118 I totally understand your fears. I finished 28 external and 3 brachytherapy radiation treatments right..."

Thank you for your response! I’m hoping to stay busy fir the next month to make up fir the lack of appointments 😀 hopefully the fear recedes. Take care!