Hi @neeter, welcome to the group and so sorry you get be part of the family...

I was diagnosed on 12/19/15 with Cecum Cancer and then on 1/4/16 with Follicular Lymphoma. With the Cecum cancer, Mayo took blood to test me for Lynch Syndrome. however tests came back further testing needed. When they found the follicular lymphoma, that kind of of explained why Lynch isn't an easy find. So I go back in May for more testing.

I hate say my Mother died from Endometriosis cancer at age 59 back in 2002. She was a pretty stubborn woman and didn't trust doctors. Refusing any and all treatments. Which she followed in the same direction as her father, who died of Bladder cancer in his 60's. who refused treatments. Same with on my Dad's side my Grandfather died of liver cancer . He also had a brother who died of liver cancer both in their 60's, Plus he had 2 more siblings die of colon cancer in their 50's and one of breast cancer. I am surrounded by relatives who died with cancer. I don't have any brothers or sisters and my support group is all men. My Mom and Grandma died and left me with 7 men. Trust me there not the best at being a supportive group. Horrible I might say.

So how am I handling this? You just live while you can. And I look at other people who have other debilitating diseases. God, having a disease of any sorts is a horrible to have to deal with. Yes I have my moments and days where I break down feeling sorry for myself. But I just have to keep reminding myself that I am going to kill cancer. I want to add Miracle, into the phrase doctors kept telling me about my case that I am "Rare but not Unusual"

I actually feel fine even after the colon surgery. The surgery was in 1/11. I came home and all I needed was over the counter Tylenol. I never needed the stronger pain pills they gave. I swear the Doctor's at Mayo were godly. Cause I have to be an odd case, of only needing Tylenol after a foot of your colon removed.

6 weeks after surgery (Shhh I shouldn't say this but) I went on a Rock cruise. I go the hell with it, what do you do when get diagnosed with 2 cancers, you go party like a rock star. (I didn't drink or smoke) Today, I am just about 12 weeks after surgery. I am getting back on my mountain bike (Colon surgeon said no mountain bike for 12 weeks) and I am heading straight to the gym. (hematology DR says don't loose any weight).

Well I been gaining weight and I can't be sitting around the house, working and thinking about cancer. It will make us crazy doing that. So I need to channel my energy into making myself feel better and not stressing about life.

So you know I am on, what is called a wait and watch approach. Colon cancer was removed and the follicular lymphoma, well I am not having any symptoms that they treat. So your sent home to wait and see if and ever your lymphoma morphs into something more serious. You become a CT scan patient. Cause that is what is, my current course of treatments.

So with my all I said.

Can I just recommend to you that you need to seek out 2nd and 3rd opinions. I saw 3 GI Doctors. Mayo Clinic was my 3rd opinion. I can honestly say I trust them wholeheartedly. And when I went too them, my gut knew something wasn't right about my body. The first two doctors made me feel like I was making stuff up. Like there was no way with what I was saying could I look so good and have perfect blood work. They swore up and down to me all I had was a precancerous polyp. If I would of listened too them. Well it scares me to think of what I would be going through now. They only recommended removing my Cecum. Even their surgeon felt the same. Told me to go home and think about what kind of surgery I would like? Asked me what I felt was best to do remove, just my cecum or let him take 6 inches of my colon and a few lymph nodes. Just incase there was a slight possibility that it came back cancerous.

Personally, I don't want doctors leaving what is the best course of action for my medical care up to me. You really need really good Doctors. One you can trust, and one who makes you feel like your life is most important to them. The Doctor should know what is the best treatment plan for you. When you find that doctor you will know what will be the best treatment plan or course to take.

I wish I could offer you more.. God Bless.

Travelgirl