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Life Expectancy with cavitary MAC

MAC & Bronchiectasis | Last Active: Sep 7, 2023 | Replies (35)

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@sueinmn

Hello, I think your idea of finding a pulmonologist is a very good one. I noticed in a previous post you said "I cough as hard as I can to bring up any mucus" That is not a very good way to do airway clearance because it can lead to sore ribs, sore throat and other issues, so it sounds like you could really use some coaching and a plan.

Here is a very helpful, but somewhat long video explaining the "whys" and "hows" of airway clearance from the World Bronchiectasis Conference a few years ago.
https://www.youtube.com/watch?v=TKA5IR7ePQo

Now let's talk about antibiotics...NOBODY wants to be on them, but some of us need them. It might be interesting to read what some of our members have recently had to say:
https://connect.mayoclinic.org/discussion/macntm-is-different-for-everyone-treatment-might-be-different-too/

Also, since you posted under the topic of "Cavitary MAC" have you been told that there are cavities of infection in your lungs? The presence of cavities is one of the key reasons for deciding to treat with antibiotics, because it means the infection has been there for a long time, and may be hard to clear.
Sue

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Replies to "Hello, I think your idea of finding a pulmonologist is a very good one. I noticed..."

No I have not been told that I have cavities of infection in my lungs. I haven't been told much about any of this just that I have MAC. I will hopefully find out when I see the ID doctor. I found this site when I typed in MAC. I didn't know there were other types of MAC. But I'm finding that reading these post helps me understand a little about MAC.

Maritomi