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Anyone experienced Bone Marrow Transplant with TP53 mutation?
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: May 9 4:42pm | Replies (20)Comment receiving replies
Fortunately, my wife and I live relatively close to the transplant hospital in Los Angeles. But, commuting to and from is never fun in LA traffic. And you are correct, the extra month takes a little pressure off the preparation for my hospital stay. I also have my list that I'm diligently working on. But certainly, any ideas are welcome. The good news is that there are so many resources, such as the transplant center and outside organizations, like...Be the Match. But the best ideas come from other transplant recipients, like yourself. Please LMK if there are other posts or resources, I might want to check out. Mahalo! Steve
Replies to "Fortunately, my wife and I live relatively close to the transplant hospital in Los Angeles. But,..."
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Hi Steve, Here are a couple of links to conversations about prepping for transplants and after care.
The first was in a list I compiled for transplantation while I was at Mayo-Rochester for 4 months. Other members have added their ‘necessities’ to the lists in subsequent conversations.
https://connect.mayoclinic.org/comment/703859/
https://connect.mayoclinic.org/discussion/my-bone-marrow-transplant-bmt-story-will-you-share-yours/
This is a really comprehensive aftercare guide from Memorial Sloan Kettering. I had a very similar list from Mayo but this was already online so it’s my go-to guideline.
You’ll no doubt have your own educational classes and information for life going forward.
https://www.mskcc.org/pdf/cancer-care/patient-education/leaving-hospital-after-your-allogeneic-transplant
There are other friends here in the forum who have also had allogenic stem cell transplants a few of these are: @alive, who just celebrated her 7th rebirthday, @kt2013 who had her transplant 10 years ago, I’m at 4 years and @edb1123 who is coming up on her 3rd anniversary.
Don’t hesitate to ask us questions. We’re here to offer support and to help you (your caregiver) navigate this journey. It helps to talk with others who have walked the walk.