1. < Neuropathy

Sudden onset neuropathy and scared

Posted by formerfisherman @formerfisherman, Feb 14, 2022

Hello everyone, I do not have an official diagnosis, bur I see my doctor Friday, and I am going to tell him about the sudden onset of tingling, burning, numbness and weakness that just appeared out of nowhere in my feet and legs.

It started about three weeks ago just out of the blue ive been having those symptoms which are almost certainly neuropathy related. I'm utterly miserable. Can't sit or stand long, so now I csnt work or go fishing like I used to love doing. That in my feet would be peripheral neuropathy once confirmed , im 99% confident it will be confirmed as neuropathy.

Now delving a little further I think I've also had neuropathybin my autonomic nerves. Out in warm weather my heart rate would just soar-- over 130 BPM at times, with a high of 15< bom one time. I didn't think much at the time, I thought I was just dehydrated, drunk some water and once I got in the cool, my heart rate went to normal.

I have read that neuropathy of the autonomic nerves can do that, thus I have begun freaking out. Can neuropathy kill you? I don't mean to stir anxiety here but thats something that I worry about wince I have a longstwnding history of anxiety and panic attacks, always worried about something health wise happening.

Now that it appears I do have an issue to worry about with this neuropathy stuff, are there any tips in how to cope , and is there hope of regaining functionality, and are my fears of dying from.this stuff legit, or aggravates by my anxiety? Again, of course the best place for advice is with the doctor, but until I can see him Friday, I was just wondering if there are things others with similar experiences can address.

Interested in more discussions like this? Go to the Neuropathy Support Group.

jmrmackenzie | @jmrmackenzie | Aug 13, 2023
In reply to @betty1949 "Your readings are better than mine even after changes. BUT I did lose 25 lbs and..." + (show)
@betty1949

Your readings are better than mine even after changes. BUT I did lose 25 lbs and that really helped to make the A1C go down. I'd work on weight. I did lots of carb counting and eliminating sugars, etc. After 3 months I lost that weight. I walked every day too. It was not my style to go on this kind of rigid diet but I was scared so I did it. And it really helped. So yeah, it never hurts to lose extra pounds, eat a bit better, and exercise more. Have at it!

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Did losing weight help reduce your neuropathy?

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betty1949 | @betty1949 | Aug 14, 2023
In reply to @jmrmackenzie "Did losing weight help reduce your neuropathy?" + (show)
@jmrmackenzie

Did losing weight help reduce your neuropathy?

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No, it did not. It lowered the A1C which might cause the neuropathy to slow down its progress. Once you have this illness, it's here to stay for the most part. My path will be of increasing discomfort etc. But I'm doing all I can to slow the progression. Not great news for you, but that's what I keep hearing.

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ginette | @ginette | Aug 14, 2023
In reply to @1oldsoul "Hello @formerfisherman and those who posted replies. I came across your posts and was wondering if..." + (show)
@1oldsoul

Hello @formerfisherman and those who posted replies. I came across your posts and was wondering if you could update us on everyone’s progress. I am in another forum on Blood Cancers as I was diagnosed with MGUS in 2021. I have had occasional mild numbness on the bottom pads of my feet and toes and a burning feeling in my feet since 2020 but I kind of chalked it up to the fact that I walk 3 miles every day and I am almost 70. However, just in the past 6 months something has changed and the peripheral neuropathy is moving half way up my right leg and in my right hand. I saw a neurosurgeon last year who could not find anything in my brain to cause issues but did find degenerative and bulging discs in my neck. I already knew I have this problem as well in my lower spine along with scoliosis and a recent diagnosis of osteoporosis. While the intermittent numbness is not affecting my balance or mobility, I am finding that there are other strange symptoms occurring such as digestive issues, worsening insomnia, fatigue and twitching in my right hand under my thumb that is interfering with my sleep. Very scary when we cannot understand what is happening in our bodies. I am scheduled to see the neurologist again on Tuesday and my GP scheduled me with a Rheumatologist in Dec but that’s a long wait…. Thanks to all and you are all in my thoughts and prayers.

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I think your MGUS is heading toward Smoldering Myeloma... This condition exacerbate Neuropathy.... Ask for an exam that is called: Serum protein electrophoresis. Your story is strangely the same as mine!!

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bulldozer | @bulldozer | Sep 30 8:37pm

formerfisherman I have the same problem with my feet and there are treatments for it. So seeyour doctor and start treating theproblem.
I have had problems with anxiety too!! The best thing to do for Anxiety is to stop the same thought from going around and around and around in you head!! The way to do this is when you discover the same thought is going around and around is force your mind to think of something else or do some activity that forces your brain to think about the task at hand.

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