← Return to worsening symptoms after mengingioma craniotomy

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worsening symptoms after mengingioma craniotomy

Brain Tumor | Last Active: Aug 18, 2023 | Replies (24)

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@ihearvoices2

It has been almost 4 months since I had a resection of a parafalcine meningioma which had invaded the superior sagittal sinus and the calvarium. After surgery my right leg was paralyzed, had a few seizures while in ICU and spatial difficulty. After 2 weeks moved to a rehab hospital for another 2 weeks to have e-stim done and PT to assist in getting my leg to move again. When I left I was using a walker and the leg was slowly getting better I could move my toes and stand on it but it still felt very heavy. I have finally progressed to a cane.

At about 8 weeks my right leg became numb from the tip of my toes up to my hip and my lower back pain came back. I think using the walker I bent over more and it helped alleviate the lumber issues. My neurosurgeon had another MRI done which showed small venous infarction of the left paracentral lobule and the precuneus has evolved into encephalomalacia. He told me this was to be expected and things would continue to get better. Another neurologist he is now having handle my issues wants to do more testing.

Every answer I get is it will take time but things will get better. Why didn't someone warn me of this? I have no life now and just cry. I sleep on average 14 hours a day and told it is due to the brain trying to recover and some of the medications such as Keppra.

Has anyone else had an infarction or had complete numbness of a limb 2 or more months after surgery?

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Replies to "It has been almost 4 months since I had a resection of a parafalcine meningioma which..."

My daughter had a Craniomoty two years ago, she has encephalomalacia on the cerebellum and now on the left side of her brain. She suffers from trigeminal neuralgia, but she has been doing acupuncture to help with the pain.

I did not have those particular issues, but I was worse after surgery. A couple of symptoms I had before surgery are gone. Some remain and some symptoms are new. I have made progress with better balance, much less dizziness & fewer tremors. I’ve said they should tell you that you may be worse before you get better. My heart goes out to you. I was discouraged and cried off and on when things were worse. Keep fighting!