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Denial of MCI - how does spouse/caregiver cope?

Caregivers: Dementia | Last Active: Sep 11, 2023 | Replies (20)

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@IndianaScott

Good morning, @ihanrath I'm not sure what part of your husband's and your difficult journey you are seeking suggestions with, but I'll give you a couple of my thoughts based on my caregiving years. I know everyone's unique, but in my case, I knew things about my wife and MIL's condition far before the doctors and would act on that knowledge as best I could as fast as I could. Kind of 'if it walks like a duck and quacks like a duck, it's probably a duck". Denial is a tough attitude to break and in the case of when someone's brain is 'broken' for whatever reason, I realized I had to be the one to take action for their good, their safety, to protect our assets, etc. I simply couldn't wait for a 'formal' proclamation from a medical pro when I pretty well knew what the problem were. This allowed my wife and I to get our crucial affairs in order while she understood what we were trying to accomplish. My in-laws didn't and it resulted in a real mess later on for them.

I'm happy to try and answer any questions you might have if I can help.

Strength, Courage, & Peace

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Replies to "Good morning, @ihanrath I'm not sure what part of your husband's and your difficult journey you..."

I lived with my wife at home for a little over two years during which time (mostly at the beginning of this period), she proclaimed that she couldn't do these things anymore: drive, cook, pay bills, enter income and payments in a checkbook, and her hygiene became worse, where she wore the same clothes every day, didn't shower, brushed her teeth very quickly, and slept a lot of the day. She didn't talk much when awake, and often I just talked to myself with her sitting nearby. She was very anxious when I had a volunteer meeting away from home, and this led to me staying at home all the time. I eventually decided to place her into a memory care facility at the beginning of this July, and that decision wasn't difficult, but I felt a lot of guilt about it. She never received a diagnosis of MCI or of AD. Her psychiatrist was a little baffled, because she didn't want to talk about her condition or do much to treat it, but I think she has a combination of MCI and depression. She remembers our conversations and activities in which I'm involved, but doesn't like to (or can't) talk about what she's doing, activities in her facility, hasn't really engaged with anyone besides her roommate, etc. I often nod off when I visit, because there's little to talk about, but she enjoys my presence, and doesn't mind this. It's really a shame, because she was a vibrant, energetic person who took pride in her appearance, had a lot of friends, enjoyed cooking, reading, exercise, and travel. I put her on a waitlist for a nicer facility, because I think they might attempt to work with her more, the food would be better, and she'd be more closely matched with a roommate who was at about the same level of decline, but she doesn't seem to care -- when I told her I did this, she just said, "uh-huh," which is becoming a standard response to a lot of things I say. I'm in a men's support group and their mantra is that you have to take care of yourself first, and I'm finding that to be true. Best wishes and know that you are not alone.