Connect
← Return to Anyone experienced Bone Marrow Transplant with TP53 mutation?
Discussion
Anyone experienced Bone Marrow Transplant with TP53 mutation?
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: May 9 4:42pm | Replies (20)Comment receiving replies
Steve, Congratulations on such a great donor match! That one is definitely worth waiting for. I had to wait an extra month too and it was not an issue to delay.
This gives you time to prepare. Do you have to relocate for your stay? My husband and I had to set up housekeeping in Rochester for 4 months. It’s about 4.5 hours from our home. Initially it all felt daunting, especially while recovering from all the months of chemo from the AML. But I made lists and we got everything set. It was quite a great adventure for an old married couple. 😅
Let me know what I can help with. We have some great discussions here about what to pack for transplant, lodging ideas, etc.
Keep me posted…and I truly Carpe Diem! Never waste a moment.
Replies to "Steve, Congratulations on such a great donor match! That one is definitely worth waiting for. I..."
Connect
Fortunately, my wife and I live relatively close to the transplant hospital in Los Angeles. But, commuting to and from is never fun in LA traffic. And you are correct, the extra month takes a little pressure off the preparation for my hospital stay. I also have my list that I'm diligently working on. But certainly, any ideas are welcome. The good news is that there are so many resources, such as the transplant center and outside organizations, like...Be the Match. But the best ideas come from other transplant recipients, like yourself. Please LMK if there are other posts or resources, I might want to check out. Mahalo! Steve