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@jk77

Thank you so much for your reply. I've always brought my laptop, with a typed list of questions, to every appt. with my onc., and I type his replies (and also record the appt.). Will continue to do so, and thanks.

I'm being treated at a hospital that isn't nationally recognized in any discipline, and this makes me nervous with regard to surgery. (My diagnosis came out of nowhere, after some intense itching and jaundice prompted an ER visit, and I ended up at this hospital bc my primary-care physician was here.) My onc. has good educational credentials and has been practicing for about 20 years; he's smart, and I trust him, not least bc he has pushed for me to get surgery despite an early indication that my cancer night be metastatic (which would lead him to give me palliative care only).

I live close enough to Hopkins Hospital to be treated there, but I don't want to leave my onc. (or the social worker who has helped me with some related financial woes). I plan to meet with a Hopkins surgeon as well, and I plan to ask my onc., whom I'll see two days after I see the surgeon, whether my having the surgery at Hopkins but having all of my my post-surgery and post-surgical-recovery care back at the non-Hopkins hospital would jeopardize my relationship with him or with the non-Hopkins hospital.

I probably should have gone to Hopkins as soon as I had the diagnosis, but there was a giant logistical complication related to getting a referral to an onc. (don't ask) on top of the general overwhelming-ness of "Hey, your current symptoms aren't something chronic / manageable -- they're cancer, maybe metastatic!" So I passively threw myself on the mercy of a patient advocate at my former PCP's hospital (the non-Hopkins one) bc I didn't know what else to do.

Sorry if this is waaay too long, and thank you very much for your time, help, and kindness. Take care.

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Replies to "Thank you so much for your reply. I've always brought my laptop, with a typed list..."

Oh, now I think my reply was much too directive. It sounds like you are very organized and have already made some great decisions that you feel comfortable with as far as care. If you have a great doctor that you trust, I think that is wonderful. Don' t question yourself because of anything I say. I only mention things that worked for the two cancer patients I was helping. It is certainly not the only way to do things and it may not even be the best way. I hope that everything goes well for you.

I have had other people close to me get treated at other hospitals for cancer and they are doing well and were very happy with their care, by the way. Your message was not too long. I was happy to read it. I am not sure you are a person of faith, so I hope this does not offend you, but I will be praying for you.