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Research for rare autoimmune diseases

Autoimmune Diseases | Last Active: Jan 13 5:32am | Replies (7)

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@gingerw

@zebra2022 Here is what the Rare Disease network has to say about your condition: https://rarediseases.org/rare-diseases/mixed-cryoglobulinemia/
And here is what Mayo Clinic has to say: https://www.mayoclinic.org/diseases-conditions/cryoglobulinemia/symptoms-causes/syc-20371244

Do you think your situation may or may not be related to any other health concern you have going on right now?
Ginger

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Replies to "@zebra2022 Here is what the Rare Disease network has to say about your condition: https://rarediseases.org/rare-diseases/mixed-cryoglobulinemia/ And..."

I already had the sjogrens along with the ra factor, plus r.a.. I also have leukocytoclastic vasculitis as well. I never had hep c so I know my cryo was not from that. I never had very many infections (can't remember the last one, let alone being sick). I didn't know there was an issue until I went to the ER for a migraine and was admitted for heart failure. Spent a total of 19 days in the hospital. When they diagnosed me through a biopsy in my kidney. I had so many procedures and tests done during that time it would make your head spin.
I'm just looking for answers and my doctor's seem to want to pass me off to someone else because they don't know.