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Anyone experienced Bone Marrow Transplant with TP53 mutation?

Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: May 9 4:42pm | Replies (20)
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@alohasteve

Lori, Thank you so much for taking the time to reply. I have been looking at Mayo Clinic Connect for a couple months, but had never posted anything, until this week. I've seen a number of your posts on BMT/SCT. Your words are encouraging and helpful to many, including me.

The great news is that I have a designated donor with a 12/12 match. Apparently, the donor had a scheduling conflict, so my SCT has been pushed out another month. My disease hasn't progressed to AML, so the doctor isn't concerned with the additional month.

Thanks for the offer to reach out, should I have additional questions. I just may take you up on that. Carpe Diem! Steve

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Replies to "Lori, Thank you so much for taking the time to reply. I have been looking at..."
Lori, Volunteer Mentor | @loribmt | Aug 13, 2023

Steve, Congratulations on such a great donor match! That one is definitely worth waiting for. I had to wait an extra month too and it was not an issue to delay.
This gives you time to prepare. Do you have to relocate for your stay? My husband and I had to set up housekeeping in Rochester for 4 months. It’s about 4.5 hours from our home. Initially it all felt daunting, especially while recovering from all the months of chemo from the AML. But I made lists and we got everything set. It was quite a great adventure for an old married couple. 😅
Let me know what I can help with. We have some great discussions here about what to pack for transplant, lodging ideas, etc.
Keep me posted…and I truly Carpe Diem! Never waste a moment.

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