← Return to Had lobectomy in 2020 still having radiating severe nerve pain.

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@mef

Wow you’ve certainly been through a lot. I used to be a runner & felt like something was wrong with my lungs like an infection. I had 3 pop up side by side . They wanted to wait & see but I didn’t. My dad had died of lung Cancer. I insisted on a biopsy. I had a lung collapse so they wanted to wait. I said no I want a biopsy. Sure enough Adenocarcinoma. Surgeon said because there were 3 side by side he wanted to remove entire URL
I agreed. That was 03/2020 since then 2 popped up on right lobes but now 5 popped up on my left lobes. I feel history is repeated itself. If they grow I’m going to insist on a biopsy. Doctor prescribed Gabapentine for the nerve pain & it does help however if I stand too long it comes on fiercely so I get on a heating pad & that helps a lot. I did not require chemo or radiation with first surgery because we (actually I) caught it early.
For those out there reading this I want you to know that if something feels off get it checked out. Insist ona biopsy if large enough. Speak up & be your own health advocate. It’s that important!

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Replies to "Wow you’ve certainly been through a lot. I used to be a runner & felt like..."

I am so sorry. There is a limit to how much lung tissue they can remove. This is why I opted for SBRT to kill my 2021 spot. They can take out just a wedge or a lung segment but I just didn't want them to take out any more lung.

Did you get your tumor tested for all proteins and other biomarkers? I am KRAS G12D. There is no targeted therapy for it yet, but they have a promising drug in phase 1 testing right now.

Did they PET your new spots? My latest spot had a SUV of 2.7 which seems to suggest it is slow growing so far. So this is also why we are just watching it.

Wouldn't it be wonderful if your spots and mine went away? That's my prayer.

For my severe nerve pain, I use a combination of gabapentin and Cymbalta. The pain is managed very well!!