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Newly diagnosed, how to find best help in North-West US?
Gynecologic Cancers | Last Active: Sep 11, 2023 | Replies (17)Comment receiving replies
Do you know what grade your cancer is? If it's grade 1 or 2, three to five weeks doesn't sound all that bad to me, especially if you don't want to travel. My impression is that doctors across the country (and the world) do lots of robotic-assisted hysterectomies and are quite good at it. Especially if you're at an NCI-desigated cancer center, they should do a good job.
When I was dissatisfied with how long it took for me, (11 weeks from "suspicious for endometrial carcinoma" on an ultrasound to the hysterectomy, where most of that was waiting to get a biopsy), I was trying to figure out how long was reasonable. The best I could find was a paper from the pre-Covid NHS in the UK saying that 8 weeks from the patient presenting with bleeding to the hysterectomy was a reasonable goal. Obviously that didn't happen for me, even though, or maybe because, I was treated at a top-ranked cancer center. Once they got around to it, the care I got was fine. But I was boiling mad when they finally diagnosed it as a grade 3 cancer (and then took 3 weeks to schedule surgery.)
But from reading this forum, it sounds like the Mayo clinic in Minnesota has lots of satisfied customers who were seen quickly. I'm sure people who were treated there will fill you in on the particulars. (I was tethered to local hospitals by Obamacare.)
Replies to "Do you know what grade your cancer is? If it's grade 1 or 2, three to..."
Recently found to be stage 2 , hysterectomy has happened. None on lymph glands, which is good.
I don’t think my insurance will cover Mayo Clinic or Minisota, have to look more into it.
My niece is a big fan of Anderson in Texas , I don’t think they score as high on ovarian cancer though.
Thanx for reaching out, and I hope you’re doing well through the care that you did get! Hugs
Got upgraded to 3b ovarian, original plan with Avastin might be scratched do to injury caused mesenteric ischemia. Pretty sure my days are numbered.
Where did you go? In oregon thinking I might be better off doing what it takes to get in with MD Anderson, Dana Fabre , or Mayo. Really not sure if I’m in a good place here for numerous reasons.
Thanx for sharing, prayers your way
I was told 2 and have since been upgraded to 3b, with no lymph gland affected, also injury caused mesenteric aschimia.
Feeling pretty challenged on this one, in my mid 60s. Staying positive, and realistic at the same time. Open to any direction and groups available. Can’t find a therapist with cancer background.
Thanx again, hugs of healing
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Thank you for sharing, it’s Medicare with Providence, so they’re not accepted outside of most of the recognized cancer clinics outside of this area.
I’m going to call Medicare and aging and disabilities tomorrow and see if I have options.
I’m very great full for your direction and response. This is so overwhelming when you don’t feel well. Thanx again