It looks as though the nephrogenic diabetes insipidus or variation is the issue. Desmopressin, which as I understand it, is lacking which makes it hard for me to be hydrated. This is from long-term lithium use. Again, this is as I understand it right now. I will have a Zoom appt. with Dr. Dahl at the end of August. So, my question is, if my local nephrologist prescribed desmopressin or NSAIDS to keep my kidneys hydrated, would this have made a difference in stabilizing my kidney function? My local neph said never to take NSAIDS! Confusing.

I'm so grateful for Dr. Dahl's expertise in this area. Possibly consulting other Mayo nephrologists because NDI is rare but I saw a statistic that 55% of people on lithium get it. I consider myself lucky because I was on lithium for over 35 years before this became an issue. My GFR and creatinine were in the normal range all those years! I'll report back after my appointment.
Hugs to all and many thanks for this discussion!