Connect
← Return to Relapse endometrial cancer
Discussion
Comment receiving replies
Yes! Especially when you get to the 5 year mark. I just keep pushing for my tests, I have a medical oncologist who feels CT’s are no longer needed after 5 years not happy with that since I have had 3 cancers. I talked to my gynecologist oncologist and explained my concern especially after they missed the cancer on the first pet scan, and I went to 4 gynecologist oncologist before I found one who would use a speculum had I not been proactive I would probably not be here to write this, due to this I have issues with trust in doctors I explained this and the fact that I would hate to find out later I had cancer that was missed so I asked for a pet scan which was ordered for me. It’s naughty really but try saying you have stomach pain, cramps etc I find that works. We only have one life so do what you have to to protect it.
Replies to "Yes! Especially when you get to the 5 year mark. I just keep pushing for my..."
@jeanadair123 The use of a speculum in our follow-up cancer surveillance appointments has come up in other Discussions in our support group. I had my most recent cancer surveillance appointment the first week in September. I get my speciality care at Mayo Clinic in Rochester. I asked my nurse practitioner this question. Does she use a speculum with all of her patients and she said “yes”. This is the standard protocol. So every time I’ve returned for these appointments I have a pelvic exam that includes a speculum to have a look inside the vagina and at the vaginal cuff. In fact, this is how my recurrence of endometrial cancer was found in 2021.
I was initially concerned that CT scans were not part of my exams after I was first diagnosed with endometrial cancer in 2019 and had a hysterectomy. However, CT scans are now included in my exams following my recurrence in 2021. In my opinion, there is nothing that can replace the “hands on” exam.
So, let’s keep advocating for ourselves. We know our bodies best, right?
Connect
Thankyou for such good advice!
I will have my first follow up september 28. I may just have to be a little naughty to get them to at least do a CT scan!
Wish me luck!!!