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General question on vasculitis

Autoimmune Diseases | Last Active: Aug 13, 2023 | Replies (4)

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@SusanEllen66

@sb4ca I forgot, I had the flu followed closely by bronchitis about 7 months before the Vasculitis appeared.
I blame it on that virus.

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Replies to "@sb4ca I forgot, I had the flu followed closely by bronchitis about 7 months before the..."

This is just too uncanny! Are you sure you don't also have a primary immune deficiency too, lol? I will say this, when this whole thing started happening at the end of June I felt sick as a dog. I thought for sure it was herpes because the red flame spot started weeping and then got a gold crust on it. It went into my eye on that side and I was diagnosed with herpes which is only one of the other times I've had it in my eyes (maybe it's always been something else?). Then I got tiny red sores which spread everywhere. Some looked like tiny blisters and seemed grouped by 3's. I got the ulcers in my mouth and back of throat. Two weeks later I had 8 gum line cavities with these black open holes. My mouth burns from just toothpaste. At the beginning I took an anti-viral, 3000 mg/day for over 10 days. Both my primary and neurologist brought up Behcet's disease though I don't fit with that either. (This is when my neurologist recommended going back to Mayo). It could be I got impetigo on the original spot because a spot on my chin also crusted. I took some ampicillin (almost full course I had on hand) and that went away. I have sores in my nostrils that I was afraid was MRSA as just months earlier an ENT cultured another sore in there that was MRSA. But it is now itching like mad so I'm using some fungal cream as the mypurcin wasn't doing anything. All this and way more is why I'm heading back to the immunologist that originally diagnosed me with common variable immune deficiency through the University of Irvine Medical Center. And on top of all that I'm getting bad neck pain again that I don't know if it's related to the surgery at the beginning or the year, a new pathology or related to the sudden appearance of significant scoliosis found last spring. Now that was shocking see a huge difference in the curve (or lack there of) of my waist line. It's just never ending over here. And I haven't even brought up some type of hepatitis they're trying to diagnose. I will turn 65 this year and this is by far the worse health period I've ever had. Just awful with immense fatigue. I even didn't go on my vacation with my sisters I feel so crappy. Please tell me you are faring better.