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Newbie & scared

Breast Cancer | Last Active: Sep 27, 2023 | Replies (122)

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@bpknitter53

@mkb4435 - when I got my initial dx I did research on possible treatments so when the oncologist made her recommendation I knew it was what was used for my try of bc. But I also asked about other possible treatments and she explained why they weren’t recommended. This way I felt comfortable with the treatment plan. I will say I spent a lot of time reading and researching.

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Replies to "@mkb4435 - when I got my initial dx I did research on possible treatments so when..."

I did a lot of research too! Yet it seemed hard to find much that was specific for the early stages of TNBC. Some of the newer research on treatments was specifically for metastatic TNBC, understandably, because that is what kills. My surgeon had told me she didn't know if chemo would be recommended because my tumor was 0.5 centimeters and that is the cutoff (don't usually do chemo if less than or equal to 0.5 cm) unless there are other high risk factors.

I think one of the things that upset me about the visit was that I expected it to be a discussion of options, and that my input or opinion would enter into the decision of what to do. While the oncologist listened to me and answered my questions, it became apparent that there was only one option and that was the one she had decided on. And perhaps she is right. But I think having another opinion may help because my expectations will be different now. (Most of my other doctors lay out options and give me some decision-making power so I am used to that.)

Thanks for sharing your experience.