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Any Optic Nerve Meningioma Patients Who've Had Surgery?

Brain Tumor | Last Active: May 13 6:52pm | Replies (110)

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@colom22

I had a craniotomy surgery on 9/2022. This was a frontotemporal tumor 3x4 cm that has grown into a sphenowing meningioma. Prior to surgery I had double vision, and my left eye was protruded 4mm. Surgery went great, and my vision was preserved. In March of this year another tumor was found, a left sphenoid sinus tumor 2x2 cm. Had surgery again, this time through my nose so recovery was faster. I still have a remnant laying against my oblique eye muscle. No symptoms but since I had 2 surgeries in less than a year, and this is tumor that re grows, we looked for a second opinion for the remaining behind my left eye. I have been recommended radiation ( likely proton bean or photon radiation). I'm inclined to do radiation, but I'm scared about losing my vision. The radiologist says explained well the side effects including problems with the pituitary gland. Anyone who has undergone this type of radiation? Pray to the lord for all of you and our health.

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Replies to "I had a craniotomy surgery on 9/2022. This was a frontotemporal tumor 3x4 cm that has..."

Thank you for posting about your craniotomy surgery last Sept. (2022) I am facing a similar surgery in a month because of a left, sphenoid wing meningioma and I am scared and nervous. So it was very helpful to read that your surgery went well. Could I ask after the first surgery, the craniotomy, how many days/weeks until you felt like yourself and pain free. I only ask this because you mention that the recovery for the second surgery went faster than the first and I am not having the surgery through my nose. I am sorry to hear you are now facing another procedure.