← Return to Husband diagnosed with tonsil cancer: looking for tips and support

Discussion
Comment receiving replies
@colleenyoung

@joy345, I wanted to check in on you and your husband. When will he start further treatment. How is the swallowing going? How are YOU doing?

Jump to this post


Replies to "@joy345, I wanted to check in on you and your husband. When will he start further..."

Thanks for asking. He has post surgery issues Dysphagia, cannot sleep due to having no cpap, hearing/jaw issues. Today, he is eating slowing mostly shaved ice/ensure/soups. Husband was given pain medications and lidocaine. This week, surgeon informed us of pathology official results. It's different from what we were told before. Both tonsil and lymph nodes have clear margins but 5 lymph nodes were malignant (out of the 61 that were removed) with a "small" percentage of extra-nodal extension (ENE). Surgeon thinks my husband need radiation only and chemo is optional but ENE is a concern and she believes radiation is enough to get rid of this. Appointment with the chemo specialist is next week. Not sure if anybody have experience with ENE and can share comments.
Treatment for radiation will be sometime in September after 6 weeks post surgery. My husband is still weak but getting better.
Its not easy to be a caregiver but God is good all the time. Thanks for everyone in this group for caring and compassionate sharing of experiences that encourages and uplift. Everyone here is an "unsung hero" for someone. Thanks again.