Connect
← Return to Had lobectomy in 2020 still having radiating severe nerve pain.
Discussion
Had lobectomy in 2020 still having radiating severe nerve pain.
Lung Cancer | Last Active: 1 day ago | Replies (114)Comment receiving replies
Thank you for your comments. Very sorry to hear you’re still suffering 23 years later. I know that we are lucky we are still alive. It’s helpful to be able to discuss these issues with others who have experienced the same issues. I’ve recently learned that I now have 5 nodules on left & 2 on the right lung. They are all small but it’s scary. Have you had any new nodules pop up on the scans?
Replies to "Thank you for your comments. Very sorry to hear you’re still suffering 23 years later. I..."
Connect
Yes. I was first diagnosed in 2000 and had a 10-12 cm tumor on the right side so my upper right and middle right lobes were removed followed by 7 weeks concurrent chemo and radiation. All was OK until 2021 when they found a 2 cm spot on my lower left lobe which biopsy showed was adenocarcinoma mucinous ( same as the old bronchial alveolar carcinoma called BAC which I had in 2000). I had that zapped with SBRT and it appears to have worked fine.
But early 2023 they found a new 1 cm spot on my right lung again. It is too difficult to biopsy so we've been watching it with CT's and seems to be stable. The PET showed a 2.7 SUV which is low energy possibly slow growing.
I am almost 70 so I am hoping it is something I can die with instead treating it. I am running out of good lung tissue.