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Had lobectomy in 2020 still having radiating severe nerve pain.

Lung Cancer | Last Active: Jul 9 2:51pm | Replies (118)
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@mef

Thank you for your comments. Very sorry to hear you’re still suffering 23 years later. I know that we are lucky we are still alive. It’s helpful to be able to discuss these issues with others who have experienced the same issues. I’ve recently learned that I now have 5 nodules on left & 2 on the right lung. They are all small but it’s scary. Have you had any new nodules pop up on the scans?

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Replies to "Thank you for your comments. Very sorry to hear you’re still suffering 23 years later. I..."
yellowstonelady | @yellowstonelady | Sep 12, 2023

Yes. I was first diagnosed in 2000 and had a 10-12 cm tumor on the right side so my upper right and middle right lobes were removed followed by 7 weeks concurrent chemo and radiation. All was OK until 2021 when they found a 2 cm spot on my lower left lobe which biopsy showed was adenocarcinoma mucinous ( same as the old bronchial alveolar carcinoma called BAC which I had in 2000). I had that zapped with SBRT and it appears to have worked fine.

But early 2023 they found a new 1 cm spot on my right lung again. It is too difficult to biopsy so we've been watching it with CT's and seems to be stable. The PET showed a 2.7 SUV which is low energy possibly slow growing.

I am almost 70 so I am hoping it is something I can die with instead treating it. I am running out of good lung tissue.

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