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Is there a Next Treatment for me?

Prostate Cancer | Last Active: Aug 13, 2023 | Replies (24)

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@foamhand

Usually the BSOC, (Best Standard Of Care) after initial radiation and hormone therapy is Chemotherapy. There are only 2 chemo drugs proven to delay the advancement of prostate Cancer. Docetaxel Chemo that can be a bit harsh. It worked for me for about a year. Then they go to Cabazitaxel after Docetaxel fails. Cabazitaxel only worked for me for 2-3 months. Now I am a candidate for the new Pluvicto radioactive injections. That's the last line drug known to work for awhile. None of these are a cure. They buy time.

I was diagnosed Gleason 9 in 2016 and I'm still here with bone metastasis and illiac lymph node metastasis. I also have a small infiltration to my right kidney ureter. I don't have much pain and still have pretty good energy considering everything. I was initially told I had 3 years left to live and I'm starting on my 8th year with the disease with a decent quality of life. I think doctors predictions of lifespan are uber conservative.

For me, it's a lot about lowering stress, eating better and keeping a positive attitude and outlook on life. Many people say I was in denial but for the past 7 years, I did what the doctors told me to, but continued on working and not thinking much about having Cancer or dying from it. I just kept on living ALMOST as if nothing was wrong. When the Cabazitaxel failed, I had the hammer drop in my mind and have been struggling with the thought of dying and having Cancer. I think I'm somewhat coming to terms with it, but it is a process. I know I don't have many years left now, but I have to make the best of what time I have left.

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Replies to "Usually the BSOC, (Best Standard Of Care) after initial radiation and hormone therapy is Chemotherapy. There..."

Great comment with lots of relevant info.

Thanks so much from every future reader of your comment and there will be many.

What an honor to read your post, I hope to be like u! Sometimes think if I’m wrong by not thinking I have cancer and keep living as it doesn’t exist!

Went back on Zolodex Then 2ys later radiated my L 1 lumbar then another year in L 2 so put me on Xtandi and Xgeva as eill as Zolodex No talk of chemo

2017 was first radiation 40 x

Well said thx u for ur honest

Indeed. In 2016 doctors did not have the clinical experience in 2023. Also if you look at the trials, they have limited aims. They only need to prove the drug is better than no drug etc. So the cut off is PSA 0.5. Whereas you med team wants to take it down as low as possible, hopefully under 0.1, or 0.2. It seems the outcome is very different. So in 2016, you doctor may give his/her opinion based on what was known at the time. Happily, and hopefully, we know more now.
Thats my two cents. I am just another layman trying to make some sense out of all these.