It’s very smart to start thinking about the future because the sad truth is that the neuropathy will probably get worse as the years go by and what you can do now to prepare for that will be easier to accomplish.
I am a retired OT and also worked in rehab. People like us can’t escape what we know about what possible future disability can require. My dream house before OT school was an old Victorian with a big front porch, we live in a ranch house with one step to enter, the tub and shower stall now have grab bars and a hand-held shower head, the toilets are high ones, the washer/dryer are on the first floor level, and I have a very stylish blue print collapsible cane (Amazon). The shower chair, bed assist rail, and rollater my mother used are up in the attic. I’ve also gradually, but persistently, kept up with small repairs and saved for large ones, emptied the basement, decluttered closets, etc to prepare for if/when the house needs to be sold. My motivation is to do what I can to “get ready” for my future if/when I am less physically able.
I find doing these things to prepare make me feel settled and less stressed, there isn’t a yawning chasm ahead to feel overwhelmed by, more of an “I got this” approach. In the beginning, after diagnosis, I did a ton of research, pursued top flight Neuro and Ortho MDs, did all the testing, but it is true that you do have to learn to live with it, do what you can every day, try to not dwell on what’s difficult now, do your best with what you’ve got each particular day. We Connect friends are a great resource and comfort.