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New paraganglioma

Neuroendocrine Tumors (NETs) | Last Active: Aug 17, 2023 | Replies (8)

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@hopeful33250

Hello @cudobrown,

I'll look forward to hearing from you again after your appointment. In the meantime, if you have any other questions or concerns, please reach out.

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Replies to "Hello @cudobrown, I'll look forward to hearing from you again after your appointment. In the meantime,..."

So I spoke with my family doctor yesterday. He’s not a great doctor - very apathetic. I told him I thought there could be a connection between my neck pain and my paraganglioma. He discounted the whole idea because I looked it up on the internet, which is full of “misinformation”. He told me I was fine.
You also need to know that I haven’t actually seen him in person since before COVID, he does phone call appointments only. I live in a small city in Canada and if I leave him as a patient I will have no doctor at all. I would have to rely on walk-in clinics.
The results of the 24 hour urine test are still not back. I made another phone appointment for early in September, hopefully to discuss those results.
Not sure what I’m going to do next. There are few specialists here, I would have to drive 4 hours to the nearest major city.
I guess I’ll just continue to do research and wait for my results.