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I have a very high calcium score. What next?

Heart & Blood Health | Last Active: 1 day ago | Replies (367)

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@writer418

I tried Prluent and my LDL plunged as did overall cholesterol numbers. of course then my insurance stopped paying so I’ve switched to Repatha which is I’m told similar. Whatever you do, I’ve listened and read a lot of info about this including this board which I too enjoy. From what I’ve discovered, the best treatment is a combo of statins and a PSK9 inhibitor like Praluent or Repatha and I believe Leqvio is in that category. I’m a journalist and am soon going to write an article about the stress caused by people having this test. I wish I had never taken it. It’s changed my outlook about my own health and I’m not really sure it means anything. Statins, which I’ve taken for years, are designed to calcify plaque so it’s not dangerous. So does the fact that my score is 642 (my wife’s is 0 and she has not taken statins) mean I’m somehow at risk? I’m not convinved.

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Replies to "I tried Prluent and my LDL plunged as did overall cholesterol numbers. of course then my..."

If you are looking to interview anyone for this article, please reach out to me. I’d love to include my thoughts. Private message me for my details.

In some ways I too wish I had not gotten the test. No one can adequately explain what it means.
My cardiologist says my score didn't go to 3500 overnight, I figure I was over 400 (very high risk) for over 10 years. So I am overdue for a heart event. What a way to live.
My health has deteriorated since because I can't tolerate rosuvastatin, now down to 5mg but still have aches in the buttocks and legs.
On the other hand, I don't want to dismiss conventional medical thinking.

I sometimes wonder what would have happened to me if I hadn't take this test and gone on Crestor. Would I have died in five years or 20 years if I hadn't gone on statins? I'm healthy otherwise, asymptomatic, still do sandbag training at 61, walk a mile around the neighborhood at least 5x a week and no family history of heart disease except my father dying at 84 from a heart attack. My nuclear stress test and echo both came back normal. I sometimes question if this was a good thing or not. Guess there's no real way to tell.

I am in the same boat, 60 yr. Old female, have always been healthy, CAC of 585, (472 in my LAD) of my total score, statins have not agreed with me at all, I am doing red yeast rice 600 mg/day, my chol. numbers have decreased in 6 weeks, cholesterol is 201 down from 238, LDL 126, down from 151, I walk 36 miles a week and quit smoking 8 weeks ago, and cut out diary. I wish I had never taken the test, I live in fear of a cardiac event daily (certainly no way to live). I asked my cardiologists if we should do a cath or stent, he said no, Cath’s are too dangerous and no symptoms to indicate needing a stent, sadly when you have symptoms it might be too late. There seems to be a big void in testing AFTER the calcium test to know if you are actually okay. They don’t want you to repeat the test, but they say the score can only get worse, it cannot decrease no matter what medications you take. The scary thing is that you can hopefully keep it from progressing but if you are already at a “high risk” level you just feel like a walking time bomb, there has to be a better way to test patients at high risk levels on a monthly basis so that we don’t live in fear. Does improving your numbers really help? I have seen where people have normal Chol. numbers but have high CAC scores, and no real explanation. Also, testing for hard plaque versus soft plaque would be helpful after you get a high CAC score. I really enjoy this forum as I find it very informative hearing from others that are enduring the same health issues. Has anyone had good results from the red yeast rice?

If/when you write your article could you please share link to it. The added daily stress form this test cannot be a good thing overall...and yet impossible to 'unknow' the results.
Thank you