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My Husband's journey with Glioblastoma

Brain Tumor | Last Active: Oct 21, 2024 | Replies (174)

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@nauden

Your wife sounds like she is doing well. I have same diagnosis and pathology. I had surgery January 26 and started radiation and chemotherapy February 20. My understanding is they want brain swelling to go down and to ensure scar to fully heal before starting treatment.

I had some nausea, fatigue and lack of appetite from radiation and chemo.

I had to discontinue some supplements because they interact with Temador. If you are interested in alternative treatments I recommend you consult with an integrative oncologist. I’m not sure if your wife is a Mayo patient but there is only one integrative oncologist at Mayo and I have found her very helpful with recommendations for diet, supplements, etc. She recommended 2 books I found very helpful that have information on supplements: Radical Remission and Radical Hope by Dr. Kelly Turner.

There is also a monthly virtual Brain Tumor Support Group you and your wife might really enjoy. It is facilitated by Mayo Staff and typically Dr. Joon Uhm, Mayo Oncologist, attends. Very informative and supportive group.

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Replies to "Your wife sounds like she is doing well. I have same diagnosis and pathology. I had..."

I am interested in the brain tumor support group that you mention - we attend one facilitated by a Mayo social worker but have not heard of this one.

Thank you for your reply and posting for the brain support group zoom meeting. We are not treating at Mayo. We are in the Kansas City area using KU Medical. Thus far after only 3 radiations and chemos she has not encountered any adverse affects. Only a small sample but encouraging. Prayers to you and your family.