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Newbie & scared

Breast Cancer | Last Active: Sep 27, 2023 | Replies (122)

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@mkb4435

I appreciate all of the supportive replies. I think my emotions about this are complicated so I'm taking time to try to work them through. I think there is a combination of things - having only 2 months between diagnosis and dismissal is confusing. Just getting used to the idea of being a cancer patient when I'm told I'm not anymore. Of course, it is a good thing not to have cancer or to not need chemo but something in the way it was told to me rubbed me wrong, especially being told that I was "cured" and "cancer-free". At best, that seems an overstatement that cannot really be backed up.

There were other things that rubbed me wrong, such as being told there was only one kind of chemo that can be used and so it was either that (which would do great damage to my body) or nothing. She did later explain that "nothing" include close monitoring by a breast cancer nurse. Also, I may be feeling a bit of abandonment as she won't be following me anymore since I'm no longer a cancer patient. And she was 20+ minutes late for the appointment and blamed the copy machine (really?)

So, in a short period, I go from having something serious wrong with me to having nothing wrong with me; from having a supportive treatment team to having quarterly visits with a nurse. I truly am grateful that things are not worse, but I also have a sort of anger and grief to work through, as odd as that may sound. I won't be surprised if my 2nd opinion matches the first, but I'm hoping that any conversation that comes out of it will have a different flavor.

As a note for anyone else going through something similar: I'm a psychologist and I know this sort of paradoxical reaction is not so very unusual. I once knew someone who was considered terminal and, in the middle of mentally adjusting to impending death, got better. It was a rough road for sometime after that. Our emotions can go in many different directions at once and I tend to think it is better to ride the waves than to pretend the waters are peaceful if they're not. I am who I am and I trust it will get worked out in the end. (I'm not saying I FEEL that way at the moment, but that's what I believe.) Again, thanks for all the sharing.

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Replies to "I appreciate all of the supportive replies. I think my emotions about this are complicated so..."

@mkb4435 I know how you feel, but you are still a cancer patient with check ups. I don't see my oncologist at all but she told me she is my "oncologist for life" which was comforting!

I would not, personally, trust a doctor who used the word "cure." That is imprecise and has emotional consequences.

I did not have chemo but my oncologist considered chemo for me, and I have accompanied friends to oncology appointments. My impression has been there are several possible regimens. Again, this doctor may be imprecise in language and may mean they consider one drug to be most effective. Is that possible?

So sorry that you are feeling confused & abandoned. Some hospitals/ cancer centers have a survivorship program that helps cancer patients transition from receiving active treatment to periodic visits. Glad you are getting a second opinion. Hope you can get your questions answered and some peace of mind.