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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Polymyalgia Rheumatica (PMR) | Last Active: Nov 18 7:12pm | Replies (1907)
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@jlg75

Thank you for your quick response. I have researched rheumatologist in our area, reading their views, treatment approaches and beliefs about solving what’s going on. I don’t want to bring this up yet to my doctor but want him to help look for answers. He thinks neuropathy but it has been a bit of a struggle as that is what he only focus on. The pain is in my shoulders now too. I will request a C reactive protein test. Also learned this morning two neighbors also have PMR. We live on a lake so wonder…what’s in the water?

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Replies to "Thank you for your quick response. I have researched rheumatologist in our area, reading their views,..."
vellen | @vellen | Aug 12, 2023

I was diagnsed with PMR at the end of June this year. Every morning I would wake with pain having radiated further down my body, it began in my neck. When it reached my legs within a week and I could barely walk, I went to the ER. They had no clue after an MRI and bloodwork. My doctor agreed to see me next day and did more bloodwork; he agreed with me it was PMR.
Perhaps your doctor can do this for you as well?
I started on 15mg Prednisone daily and was pain free within hours. Now tapering and at 11mg. Startimg Prednisone is very important because if it is PMR, too long with inflammation can trigger Giant Cell Arteritis (GCA) which can cause blindness if not treated right away.

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