Fatigue after Eligard and proton Beam

Posted by Jim @wrig1jam, Aug 2, 2021

In November 2020 I had a six month Eligard shot, then completed 44 proton beam treatments on April 9, 2021. Today August 2, I have cases of debilitating fatigue at times and continued hot flashes that seem to be more frequent and more intense. Also need to take Uroxatrol to make urination easier. In May my PSA was undetectable, testosterone 17mg/l way below the 175 mg/l that is the low of the range. Has anyone else had these symptoms?

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@wrig1jam, you may be interested in this related discussion:
- Hot Flashes and Hormonal Therapy for Prostate Cancer https://connect.mayoclinic.org/discussion/hot-flashes-3/

Fatigue is a common side effect as @bruto1 @dandl48 @mrbill @semeon @kujhawk1978 @waynen and others can attest to.

Jim, do you find that physical activity (even low level activity) helps improve the fatigue and hot flashes?

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@colleenyoung

@wrig1jam, you may be interested in this related discussion:
- Hot Flashes and Hormonal Therapy for Prostate Cancer https://connect.mayoclinic.org/discussion/hot-flashes-3/

Fatigue is a common side effect as @bruto1 @dandl48 @mrbill @semeon @kujhawk1978 @waynen and others can attest to.

Jim, do you find that physical activity (even low level activity) helps improve the fatigue and hot flashes?

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I have a routine exercise program that included aerobics and weights. I also go to cardiac rehabilitation twice a week for stent placement at the end of June. I live on a 7 acre wooded property so I frequently spend a few fours every week splitting logs or picking up branches and burning brush pills.

I haven’t been able to associate the fatigue with anything but when I get it I feel like a zombie. When I talk to someone they look at me like there is something wrong. The hot flashes are associated with eating, getting too warm and stress.

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Has anyone experienced fatigue a year after their last hormone injection….testosterone almost undetectable

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@rosemarykathy

Has anyone experienced fatigue a year after their last hormone injection….testosterone almost undetectable

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Low testosterone , I believe , can really make you tired during the day and sleep poorly at night. At least, that is what happened to me. I have been off of ADT for 6 months, testosterone has increased from 6 to 19, starting to get hair on my legs and in the last couple of months had lots more energy and feeling and sleeping much better. ADT ( lupron) is good and necessary treatment, it was not too bad for me, did me good and probably in time go back on it. I hope that it continues to starve the cancer.

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@rosemarykathy

Has anyone experienced fatigue a year after their last hormone injection….testosterone almost undetectable

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Thanks for your reply….it’s a necessary but brutal drug. Hoping my husband gets his energy level back soon!

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@rosemarykathy

Has anyone experienced fatigue a year after their last hormone injection….testosterone almost undetectable

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I mentally push myself to stay active, especially when I feel the fatigue setting in. I'll head to the gym to get on the treadmill, or take a walk around the block. I could easily just plant myself on the couch and watch TV but I'm terrified of a downward spiral

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@rosemarykathy

Has anyone experienced fatigue a year after their last hormone injection….testosterone almost undetectable

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I agree with pushing yourself when you feel tired. During my radiation treatments I had a schedule where I would head to the YMCA immediately after treatment. I swam three days a week and worked on exercise machines the other two days. I also took a 30 minute nap each day. Although I am now almost 3 months beyond my 6-month Eligard treatment, I still have hot flashes and am up three times a night to urinate. Fatigue and lack of libido remain issues. I am assured by my urologist that these side effects will disappear once my testosterone significantly increases. My T score is currently 47.

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@rosemarykathy

Thanks for your reply….it’s a necessary but brutal drug. Hoping my husband gets his energy level back soon!

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I found that lots of coffee and aerobic exercise brings my energy levels up.

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@philipbrachko

I found that lots of coffee and aerobic exercise brings my energy levels up.

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I miss coffee. I recently had some urinary retention and a UTI, so I've gone to green tea. Is a cup of coffee OK occasionally?? Also on Eligard too. Fatigue, body aches, hot flashes. Finished radiation in May. Thank you. Hope everyone has a good day.

Bill
North Carolina

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@rosemarykathy

Has anyone experienced fatigue a year after their last hormone injection….testosterone almost undetectable

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No Doc every told me not to drink coffee. Force yourself if you need to, but at least walk at a good pace, listen to music it really helps. I like the FUNK genre. I'm walking full speed at dawn for 45 min. Cause it's too damn hot. Then take a cold shower....WOW! wakes me right up.

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