← Return to Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

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@johnbishop

Hello @jlg75, Welcome to Connect. I'm not a doctor and have no medical training but I have had 2 occurrences of PMR and for both my pain was all over my body and not just in the legs and lower back. I had issues walking also. Had to use a wheelchair for my rheumatology appointment when I was first diagnosed with PMR. There are a lot of conditions that mimic PMR. Hopefully you will learn more after your MRI and neurology appointment. I think spinal nerve compression can also cause lower back pain along with some of the symptoms you describe. It's good to hear that you are advocating for your own health. We are our best advocate,.

Have you thought about seeing a rheumatologist who normally have a lot more experience with what ails us old folks?

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Replies to "Hello @jlg75, Welcome to Connect. I'm not a doctor and have no medical training but I..."

Thank you for your quick response. I have researched rheumatologist in our area, reading their views, treatment approaches and beliefs about solving what’s going on. I don’t want to bring this up yet to my doctor but want him to help look for answers. He thinks neuropathy but it has been a bit of a struggle as that is what he only focus on. The pain is in my shoulders now too. I will request a C reactive protein test. Also learned this morning two neighbors also have PMR. We live on a lake so wonder…what’s in the water?