Finally signs of change. Couldn’t get anything from Mayo and nothing except guessing from my oncology team and can’t get in to see a psychologist. Hadn’t given up but continued weight loss down to 115. Now the good news had the feed tube put back in and the feed tube has given me assurance I’m getting the nutrition, hydration and calories I was not getting. I have a new primary Nurse Practitioner and she listened to me. Wow what a contrast. Anyway we adjusted my anti depressant and added olanzapine for nausea. In 42 days with tube feeding while I sleep and the olanzapine has made me hungry, thirsty and sleep better. I eat and snack orally during the day. Results higher energy level no major anxiety and 19 lbs weight gain. As well I’m able to try and eat foods I haven’t ate in 2 years since my cancer diagnosis and feeling great.
I read way-too many negative posts about feed tubes. Having mine put back in was life saving. I’ve got my life back and hoping this upward spiral lasts.
Don’t never give up, I was about too. My prayers were answered through a new set of eyes and a listening ear of a Nurse Practitioner. Probably won’t be on this sight much longer. Hope my case helps someone else and praying for all on this support sight. God Bless you all!!