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@sfnmcashatsebv

I can empathize having energy in my brain to do things, but body is physically weak and unable to move from extreme weakness. It's an awful feeling. I think it's far easier for doctors to dismiss symptoms in challenging cases and easy to give up. But, as patients we are stuck with physical pain and relentless fatigue doctors can't measure Finding abnormal lab results with clear abnormalities they can't ignore and dismiss, keep searching. Don't give up trying to get answers, find new doctors. After 3 years of nerve torture, I saw a new provider who was more familiar with severe illnesses and complex cases was most helpful. I found out i have elevated EBV levels and don't have more than just lab results, I will find a doctor who will help. I can't give up trying to get my life back

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A Mt Sinai Long Covid paper on HOW to set up a LH clinic says: Long Haul is not a mental health problem ( although mental health issues can occur as a result of dealing with illness).

[of interest to me: the rec. for Long Haul clinic states it should NOT be run by a mental health professional ]