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DiscussionQuestions on IVIg treatment for what I have: Axonal sensory-motor
Neuropathy | Last Active: Sep 11, 2023 | Replies (40)Comment receiving replies
Replies to "I guess what he is saying is, my small fiber neuropathy is no longer just small..."
Idiopathic Axonal Sensorimotor PN (though on any given day I feel I’ve left out a word in that description) . It has been confirmed by EMG. Though it came on suddenly (good health to weakness & wheelchair bound in 10 days), it was accompanied with a kidney/UTI infection but they said Guillain Barre was negative. They say it’s “possible” I could have some variant of it, but basically everything they knew how to test came up negative - hence Idiopathic. Good luck with your IVIG if you choose that option, and I hope you’re proactive with managing your symptoms. PT got me out of my wheelchair after 6 months and I’ve maintained for over 6 years and am so grateful for that!