@dreneeballengee
Hello Renee and welcome to Mayo Connect. I'm so glad that you found this forum and are able to connect with others. I can certainly understand your frustration and concern. It sounds as if you have had a lot of physical symptoms without any diagnosis or treatment.
I found some information about pheochromocytoma from Mayo Clinic's website. Here is the link.
https://www.mayoclinic.org/diseases-conditions/pheochromocytoma/symptoms-causes/syc-20355367
I would encourage you to read the entire article, including the sections regarding signs and symptoms as well as diagnosis and treatment.
Often when we face a hard-to-diagnose health issue, we need to learn as much as possible about the health issue being investigated, I'm glad that you are doing this!
I would like to invite some other members of the group to join you as you seek answers including @peg152, @jeanern01 and @dawn_giacabazi.
Please remember that it is always your right to seek a second opinion if you feel that your concerns are not being addressed by your current medical team.
After you read article from Mayo Clinic that I posted above, you will see that it lists certain foods and meds that increase the symptoms if you do have this disorder. Do any of these foods worsen your symptoms?
Thank you for making contact with me. I will read the article you have shared and will get back with you when i look at the list of meds & food and let you know.
I will be more than happy to hear from others. This has been a very lonely road over the past few months. And there are days when I don't think I can keep going.
Something that I forgot to put in my original post, if I can share it with you. I have been working on family genealogy for a few years. Couple of weeks ago I was looking at an obituary for a paternal second cousin. He died of cancer, a six year battle with Pheo! May I say that rattled my cage. I sent a copy of the obit to my PCP and I see her on Mon Aug 14. Can't wait to talk with her.
I will be back in touch this weekend.
Thank you!!
Renée