Replies to I had a CT of my lower abdomen last March for a completely unrelated reason. The…

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Neuroendocrine Tumors (NETs) | Last Active: Aug 17, 2023 | Replies (8)

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@cudabrown

I had a CT of my lower abdomen last March for a completely unrelated reason. The radiologist that read the results included in his report that he saw an unknown mass in my bladder that should be investigated. Thank heavens for his sharp eyes. I was referred to a urologist who stuck a camera up there, saw the tumour and then removed it two weeks later.

I have been having neck pain for over 2 years but my doctor couldn’t figure out why. When I got the pathology report on the tumour, I started to research paraganglioma and put two and two together. I’m still waiting on the results of my 24 hour pee test.

Thanks for the info links. It is very kind of you to make this effort for me. I may get back to you after I check them out.

Thanks
Cuda

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Replies to "I had a CT of my lower abdomen last March for a completely unrelated reason. The..."

Teresa, Volunteer Mentor | @hopeful33250 | Aug 11, 2023

@cudabrown
I appreciate the information regarding the history of this health issue, Cuda. I have also had neuroendocrine tumors (NETs), not paraganglioma but a different type and I so understand that often these are found incidentally when doctors are preforming other tests or scans. I have had three surgeries for NETs since 2003, so I consider myself to be a 20-year survivor of this type of cancer.

I would encourage you to read the biopsy report when it becomes available (either on the patient portal or when you obtain a copy from your doctor). As you read it, feel free to ask questions about anything that you don't understand. When you are dealing with a rare form of cancer, it is also very appropriate to ask for a referral to a specialist.

Are you considering asking for more scans or testing for the neck discomfort that you are experiencing?

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