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Life Expectancy with cavitary MAC

MAC & Bronchiectasis | Last Active: Aug 10 9:29am | Replies (39)

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@maritomi

So I just got a call from my primary physician and told me that my sputum test was positive for MAC. I have never heard of this and she seemed very vague as she was trying to explain to me what it was. She said it was a bacteria. She did mention antibiotics for the next 18 months. She also said that I will be referred to an ID doctor.
I decided to look this up on the internet. I was truly shocked when I read mortality rate is about 5 years. Then I found this sight. I feel much better reading everyones post. Especially those who have mentioned that they have had this for a while. I'm not sure how I feel. I don't feel bad. The only thing I've had is this chronic cough for years. I do have the head of the bed raised 4 inches because of acid reflex. If this is also in our gut then it kind of makes sense as to how I might have gotten this. I appreciate all the comments that I have read. Thank you.

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Replies to "So I just got a call from my primary physician and told me that my sputum..."

Hello, and welcome to Mayo Connect. We have a wonderful support group here to help one another deal with our journey with MAC and Bronchiectasis.

First, let me reassure you that unlike many other infections, most MAC infections are very slow to grow and expand, so a wait to see your new doc need not be too concerning.

Here are a few discussions you might find helpful as you wait to see your ID doc:
https://connect.mayoclinic.org/discussion/macntm-is-different-for-everyone-treatment-might-be-different-too/
https://connect.mayoclinic.org/discussion/find-an-expert/
Has the doctor talked to you about airway clearance techniques to get the mucus out of your lungs? If not, you might need to see a pulmonologist for this.
Sue