I wish I found this a year and a half ago. I started experiencing vertigo a year and a half ago with no known cause. It was a sudden onset one morning as I was getting out of bed and only seemed to happen if I leaned or lay flat or on my right side. 3 neurologists and a year of physical therapy and tests to rule out crystals, BPPS and a host of other acronyms and no solution. The final neurologist said he believed that it was related to the goiter in my neck. So let’s back up. Spring 2019 they found a 4 cm goiter on my left side of my thyroid and a 1 cm in my right. Biopsies were called unremarkable however I’m in clinical pathology (lab) and took slides to my job and had my pathologist review. He said it was reactive and needed further studies. When I reported to my endocrinologist he said we’re going to monitor. Fast forward Covid happens the next year so no monitoring happens for 3 years. However when the vertigo started happening in early 2022, I had a CT scan of my head and neck and the “goiter” was 6cm (that’s a 2 cm growth in 3 years). Fast forward to Feb 2023 my PCM orders another ultrasound and it’s now 7+ cm. Biopsy is positive and in May they confirmed it was a variant of follicular carcinoma called Oncocytic or Hurthle cell cancer. So they decide to take it out. Still going through testing to determine whether it had metastasized. They failed to biopsy my lymph nodes during surgery so I’m scheduled to start radioactive iodine treatment with scan to see if/where it is in my body. I’ll repeat this every 6 months till it’s gone. So back to the vertigo. Surgery was Jun 16. 2 weeks ago I was able to resume laying flat and on my right with no elisodes! Morale of the story is: if ever they tell you something is so rare it’s probably not that, challenge them. I’m in healthcare and can advocate for myself but they didn’t listen till it was too late. They’re listening now.

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