I have worn hearing aides for the two years prior to AIED. The hearing aids do help. My left ear is the one most affected by AIED, so I can turn up the volume on my left hearing aid to hear better. However, the word recognition is not all that great. But I can hear with my right ear with the hearing aid. For that I am thankful.
I just got a call from my rheumatologist at Mayo who said all of my labs are done and he sees no indication of a systemic rheumatic disease such as lupus, vasculitis, etc. The AIED is autoimmune, but not systemic. I have an appointment with my rheumatologist and ENT at Mayo at the end of October to evaluate my progress. Until then, I am to keep a log of my symptoms and stay on a low sodium diet to see if it helps. I emailed my ENT today to see if she thinks I should go to my ENT in my hometown to have another ear injection since I still have fluctuating hearing loss. I have only had one injection while at Mayo about a month ago. I was not given a second injection two weeks later at Mayo, because at the time, my hearing had improved. I'm waiting for her response.