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@nancy1947

The Spoon Theory is pretty much what I do. I have always lived with lists to keep be organized, but now I don't expect so much of myself. I do what has to be done first. Then I lie down and take a nap (that's a new part of my routine, if needed). Then I get up more rested and tackle household chores and cooking. Thankfully I have an understanding husband. Before getting sick, I worked in my flower gardens, vegetable gardens, and yard every day unless it rained. Now I just can't. It's depressing. That's what I enjoy doing and miss it so much. But we hired someone to keep the yard up. The physical part is a challenge, but the mental and emotional part is even more difficult. I'm a strong person spiritually, so I'm sure in time I will adjust. On another note, I see many people on autoimmune drugs but still have fluctuating hearing loss and other symptoms. What the purpose of taking those drugs? To keep it from getting worse? That quality of live doesn't sound any better than being deaf to me.

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Replies to "The Spoon Theory is pretty much what I do. I have always lived with lists to..."

So yes, all of those drugs is to try to save the hearing, but the quality of life being on those drugs is what I’m questioning right now, so where I am is if I left your continues to go bad once it’s considered a dead deer, I will have a cochlear implant evaluation. If I qualify, I will have a device implanted in my ear and then we’re hearing aid light device on the outside so I can hear then I’m guessing as I wean off the drugs the writer will probably fail. Unfortunately, I appear to be one of those people that may lose my hearing completely with a I ED generally only 6% of people with it lose their hearing, and the medication was just to see if we could save it so it’s just a kind of a watching game.

Nancy, what exactly is the status of your ears right now? Can you hear and both neither either or or using hearing aids what’s going on?