← Return to Anyone out there with Autoimmune inner ear disease (AIED)?
DiscussionAnyone out there with Autoimmune inner ear disease (AIED)?
Autoimmune Diseases | Last Active: Oct 31 6:20am | Replies (228)Comment receiving replies
Replies to "The Spoon Theory is pretty much what I do. I have always lived with lists to..."
Nancy, what exactly is the status of your ears right now? Can you hear and both neither either or or using hearing aids what’s going on?
So yes, all of those drugs is to try to save the hearing, but the quality of life being on those drugs is what I’m questioning right now, so where I am is if I left your continues to go bad once it’s considered a dead deer, I will have a cochlear implant evaluation. If I qualify, I will have a device implanted in my ear and then we’re hearing aid light device on the outside so I can hear then I’m guessing as I wean off the drugs the writer will probably fail. Unfortunately, I appear to be one of those people that may lose my hearing completely with a I ED generally only 6% of people with it lose their hearing, and the medication was just to see if we could save it so it’s just a kind of a watching game.