1. < Prostate Cancer

What is the longest time after Proton therapy without ED?

Posted by bjroc @bjroc, Jul 26, 2023

I'm looking for actual experiences people had past proton therapy one goes without ED. I have asked it in other threads but it never really gets answered in a simple fashion. How many years or months past your proton therapy have you gone and not experienced ED? Is anyone 10, 15 or more years out? How about 5? Mostly seems people are active on discussion group for a year or so past therapies, and they go back to life, completely understandable. But I would like to hear from people many years out if they are on the list, especially if you had proton at Mayo. Thanks in advance for any inputs.

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

bjroc | @bjroc | Aug 10, 2023
In reply to @ftd3 "bjroc, I appreciate your post and I am curious for more details. What size was your..." + (show)
@ftd3

bjroc,

I appreciate your post and I am curious for more details. What size was your prostate before your started your medications and do you know the size they are shooting for? Are you for sure going with Tulsa Pro......if so, who and where have you decided? I have read a lot about Dr Busch in GA. I believe he is cash pay only.

Jump to this post

There is no sure about anything inside me, but it is a current plan with a solid backup of sorts.

Prostate size 110 cc, aim is 10% or more reduction roughly, more is ideal of course as it is about temperature at the lesion. Dr Scionti is the Tulsa pro guy. They are all cash pay. However, and though my insurance paid for the biopsy, Mayo's charges for a transperineal biopsy were about the same as the Tulsa Pro price complete and out the door. All in all, I think Mayos complete charges to insurance, and that means everything they charged from band-aids to nurse to anesthesia exceed the Tulsa price. But Mayo's price on MRI is about double my local university charges too. But of course Mayo has top people.

The Tulsa Pro medicare code is nearly ready so insurance can be billed, but perhaps not the next medicare update in Jan 2024, but in Jan 2025. So in a year and a half people opting for Tulsa can bill insurance with a medicare code.

REPLY
1 reply
ftd3 | @ftd3 | Aug 10, 2023
In reply to @bjroc "There is no sure about anything inside me, but it is a current plan with a..." + (show)
@bjroc

There is no sure about anything inside me, but it is a current plan with a solid backup of sorts.

Prostate size 110 cc, aim is 10% or more reduction roughly, more is ideal of course as it is about temperature at the lesion. Dr Scionti is the Tulsa pro guy. They are all cash pay. However, and though my insurance paid for the biopsy, Mayo's charges for a transperineal biopsy were about the same as the Tulsa Pro price complete and out the door. All in all, I think Mayos complete charges to insurance, and that means everything they charged from band-aids to nurse to anesthesia exceed the Tulsa price. But Mayo's price on MRI is about double my local university charges too. But of course Mayo has top people.

The Tulsa Pro medicare code is nearly ready so insurance can be billed, but perhaps not the next medicare update in Jan 2024, but in Jan 2025. So in a year and a half people opting for Tulsa can bill insurance with a medicare code.

Jump to this post

Thank you for your reply. Please keep us all posted. Best wishes.

REPLY
View MoreView Less
Please sign in or register to post a reply.