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Sudden onset neuropathy and scared

Neuropathy | Last Active: Sep 30 8:37pm | Replies (34)

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@janetlee23

I know how scared you are feeling. I now have neuropathy in both feet and it started just out of the blue. I have no health conditions, have always been a runner and I teach exercise for seniors and I am baffled. The doctors say I must live with it. I have found my meditation practice has helped me enormously. To be able to quiet the mind and the ridiculous wanderings of what could happen in the future is so torturous and useless. If I can help you in any way please let me know.

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Replies to "I know how scared you are feeling. I now have neuropathy in both feet and it..."

Janet thank you for sharing this. I too was in great health and very active with dancing and hiking, snorkeling, kayaking... and then out of the blue I had tingling in my left foot. Which in seven short months has spread to all my extremities, shortness of breath and feeling wobbly (kind of like in the past just in January when I would stand on a Bosu ball at the gym to do my weights). I was diagnosed with small fiber polyneuropathy, probably idiopathic. So, having worked for 10 years as the director of social work in a physical rehab hospital - you guessed it, my profession has me in overdrive thinking "I need to get a ranch house before it gets worse. I need to get a grab bar for the shower - I'll find a fashionable one. I wonder where I can find a fun fashionable cane." And "oh no - what if it's autonomic! And what if my neurologist didn't get this diagnosis right?" And I am awake at night worrying. Of course I'm not even physically at that point yet, or maybe never! So my question is - how do I find a meditation instructor? And is there a particular type of meditation that I should practice?

@janetlee23
Meditation can be of great value with pain, stress and other medical issues. I am so sorry to hear you now have neuropathy! Having your physician tell you that you "must live with it" is appalling.
May I ask did your physician do any testing to have determined the diagnosis of neuropathy? Did they prescribe any medications for the neuropathy. Have you seen any specialist such as neurologist or peripheral vascular surgeon for a second opinion? Please be your own advocate and do your own research, today you don't just have to live with the pain and other difficulties that neuropathy brings to us. It took me over a year for me to get a final diagnosis and as a provider myself I continued to badger my primary care physician until I was referred to a neurologist of my own choice. Healthcare is a very difficult world and again your must be your own advocate......Please keep us updated
Kim