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Has anyone been diagnosed with Central Sensitization?
Chronic Pain | Last Active: Mar 6 10:01am | Replies (195)Comment receiving replies
I tried to post and it deleted it. Trying again.
I, too, was diagnosed with CS (not bc of pain, I have pain, but it’s under control and not constant), but bc of SEID/ME/CFS. I disagree with the CS dx (diagnosis) unless this applies to ALL neurological disorders bc as I learned in my neuroplasticity book that pretty much all neurological dx’s place people into sympathetic nervous system (SNS) overload. I have dedicated a ton of time to research of neuroplasticity, Central sensitization and primarily ME/CFS. The ME/CFS symposium was this weekend. Open medicine foundation (OMF.ngo) is leading the research at Stanford. NIH gives $5 mil to research this horrible disease (compared with $150 mil to MS). We are 50 years behind on the funding and research, but the new clinical trials are promising!! I have not viewed the whole symposium yet, but it is available to the public now.
Ammes.org
Solvecfs.org
Good luck on your journey. FB has a good ME/CFS support group also. I hope to go to Stanford in the next year or 2 to help contribute to finding biomarkers and a cure!
Lastly, after you research and learn, please share with your Mayo providers and local providers. I’m finding I’m at acceptance phase and advocacy as nobody knows about this at all which leads to misdiagnosis and poor treatment. Education is everything!
Also, Dr. Sarah Myhill’s YouTube videos and book (2nd Ed). Are great and Gary Kaplan’s YouTube videos (3 part) are also very informative.
Replies to "I tried to post and it deleted it. Trying again. I, too, was diagnosed with CS..."
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Dr. Norman Doidge has an interesting book on neuroplasticity. I started reading it but it was a little deep for me so I passed it on to one of my colleagues. The four or five chapters I was able to get through were pretty informative and interesting on how the brain works with pain signals.
-- http://www.normandoidge.com/?page_id=1042
I'm with you, research, research and more research + be your own health advocate. The more you know, the better questions you can ask your doctors and hopefully the better the treatment plan for whatever ails you. One of my favorite sites that gets your brain in the mood is https://www.resilientoption.com/vlog/.