@marciak9 , I'm wishing you the best with all my heart with whatever you do next.
Are you getting any treatment at all, or stopping all treatment completely?
As a long shot, you might inquire about whether the Tumor Treatment Field equipment alone could be approved for you on a compassionate use basis. The manufacturer (Novocure) has it in various trials for PC in combination with other drugs, but I don't think there's any official use of the equipment by itself.
The patient wears a patch of electrodes on the abdomen and back, and carries a battery pack. The equipment generates an electric field which has some (unknown amount) effect on preventing cancer cell reproduction. The only side effect people experience sometimes is skin irritation where the electrodes are placed.
It's basically a "do no harm" kind of treatment... Might help, but definitely doesn't hurt. It seems this is a near-ideal "life extension" device for patients who have exhausted all treatments or can't tolerate chemo/radiation.
Worth a shot to ask?
I’m not turning down other treatments just not having that surgery. I wonder where I can get more information about Tumor Treatment Field. I see my oncologist on Tuesday so I’ll ask him.